Sickle Cell Emergency Patient Wallet Cards

The Canadian Hemoglobinopathy Association has been working for the past year on developing Sickle Cell emergency “wallet cards” for patients. The cards are available in English and French. If your clinic need to order cards please send the following information to info@canhaem.org:

Name of the clinic
Number of cards in each language
Address to be sent to

The cards will also be available for distribution during the upcoming Sickle Cell conference in Ottawa this September.

canhaem ed card

The Consensus Statement on the Care of Patients with Sickle Cell Disease in Canada

CanHaem is pleased to present the first ever national Canadian guidance for Sickle Cell Disease: The Consensus Statement on the Care of Patients with Sickle Cell Disease in Canada, 2015. We are indebted to Drs. Ewurabena Simpson and Madeleine Verhovsek who have worked tirelessly as editors of this important document.

Consensus Statement TOC

Table of Contents for the Consensus Statement on the Care of Patients with Sickle Cell Disease in Canada

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VIDEO ARCHIVE OF SESSIONS from “Lifelines: The 2015 Pan-Canadian Thalassemia Conference”

The presentations from Lifelines Conference are offered below as another opportunity to attendees. We are grateful to the speakers for making them available.

DAY 1: Healthcare Providers

Canadian Thalassemia Guidelines, Dr. Hatoon Ezzat, University of British Columbia

 

Molecular Diagnostics, Dr. John Waye, McMaster University

 

AYA and Transition, Dr. Sarah McKillop, University of Alberta

 

Chelator Update, Dr. Madeleine Verhovsek, McMaster University

 

Bones and Nutrition, Dr. Angela Cheung (University of Toronto) and Dr. Ellen Fung (Oakland Children’s Hospital)

 

Thalassemia Intermedia, Dr. Paul Telfer, Queen Mary, University of London

 

Late Cardiac Effects, Dr. Jeremy Kobulnik, University of Toronto

 

DAY 2: Patients and Families

Gene Therapy and Bone Marrow Transplant, Dr. Alexis Thompson, Northwestern University

 

New Iron Chelators, Dr. Madeleine Verhovsek, McMaster University

 

Cure Panel Discussion, Drs. Thompson, Verhovsek and Wu

 

Hepatitis C Info Blast, Dr. Morris Sherman, University of Toronto

 

Endocrine Info Blast, Dr. Angela Cheung (University of Toronto) and Dr. Ellen Fung (Oakland Children’s Hospital)

 

Why Research Matters, Dr. Kevin Kuo, University of Toronto

 

Thalassemia Intermedia, Dr. Paul Telfer, Queen Mary, University of London

Don’t be shy to discuss priapism with your medical team

Priapism is the term given to an episode when there is sickling in the penis.This is a serious complication and can result in long-term damage to the penis. Many patients or doctors are shy about talking about it…. Read More

Breathing difficulties or chest pain in Sickle Cell

You must attend the Emergency Department (ED) without delay if you are having difficulty in breathing, chest pain, or cough and fever. Read More

Why you should never ignore a fever

It is essential that if you have Sickle Cell or have undergone splenectomy for your Thalassemia, that you have a working thermometer at home and know how to use it. They cost just a few dollars and can be life saving. Read More

Newborn screening in Canada for Sickle Cell Disease

Newborn screening for Sickle Cell Disease has been shown in many countries across the Globe to result in a dramatic improvement in the health and life expectancy of children with Sickle Cell. Screening will also detect newborns with Thalassemia Major. Read More

When should you attend the Emergency Department (ED)?

The Emergency Department (ED) is the part of the healthcare system that patients with Sickle Cell Disease encounter most often. But, when should you be thinking about going to ED, rather than staying at home, waiting for your next specialist clinic appointment, or seeing your family physician or pediatrician?

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CanHaem invites patients with Sickle Cell Disease and Thalassemia

Are you a patient or family member of someone who has Sickle Cell Disease or Thalassemia syndromes? If so, we invite you to browse the patient area of the website and learn how CanHaem is working to improve the care and resources for all Canadians affected by these disorders.

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