Consensus Statement of Clinical Care of Patients with Thalassemia in Canada
Introduction and Overview of Thalassemia
PART I. COMPONENTS OF COMPREHENSIVE THALASSEMIA CARE
1. Centres of excellence: Providing a Network for Patient Care
2. Transition from the Pediatric to Adult care setting
3. Screening and Making the Diagnosis
4. Psychological Aspects of Thalassemia care
5. Quality of Life in Thalassemia
PART II. MANAGEMENT OF THALASSEMIA
1. Initial Management of Newly Diagnosed Infact
2. Transfusion Support in Thalassemia
3. Iron Overload and Chelation Therapy
4. Hematopoietic Stem Cell Transplantation (HSCT)
5. Gene Therapy (GT)
PART III. COMPLICATIONS OF THALASSEMIA
1. Cardiac Complications
2. Liver Complications
3. Endocrine Complications
4. Bone Complications
5. Renal Complications
6. Thromboembolic Disease
7. Fertility and Pregnancy
8. Non-Hepatitis Infections, Nutritions and Dentition
Recommended Monitoring for TDT Table
PART IV – NON-TRANSFUSION DEPENDENT THALASSEMIA