Communicating Prognosis in Sickle Cell Disease – Survey for adult providers

The following request may be of interest to adult sickle cell providers. Please address any queries directly to Dr. Pecker.

Dear Colleague,

We are conducting a survey of adult hematologists called “Communicating Prognosis in Sickle Cell Disease” to better understand adult hematologists’ practices of and opinions about discussing prognosis with their patients with sickle cell disease. A separate survey of pediatric hematologists  will allow us to compare responses from adult and pediatric hematologists. We hope our work will help improve these conversations.

The survey takes approximately 5-7 minutes to complete and was approved by the IRB at the Children’s Hospital at Montefiore.  All responses are completely anonymous.

To participate, please click on the following link:

If you are able, we would appreciate your help in forwarding this survey to other providers who care for adults with sickle cell disease.
Thank you and we look forward to sharing the results of the survey with you soon.

Lydia H. Pecker, MD
Fellow, Hematology-Oncology
Children’s National Medical Center
Washington DC, 20010