CanHaem’s leadership is composed of an executive comprising the Chair, Vice-Chair, Secretary and Treasurer, with a total of eleven board members who coordinate the work of the Association. You can find out more about the Board of Directors below.

Much of our work is delegated to four committees which are responsible for implementing the strategic plan: Education, Nursing, Research, and Registry. The online forums provide an area to learn more about the committees’ work. In addition there is a governance committee to provide oversight.

Executive Members

 

Richard Ward

Richard Ward

MSc, MRCP(UK), FRCPath(UK)

Chair, Board of Directors

I am the principal physician in the Red Blood Cell Disorders (RBCD) Program at Toronto General Hospital, Canada’s largest adult comprehensive care Hemoglobinopathy program.

I believe that the outcomes of patients with Hemoglobinopathies can be improved through continuing education of patients and healthcare providers. A key plank of the RBCD Program’s mission is to improve outcomes and satisfaction through education of the patients and facilitating their learning to become expert partners in their care.

My current research focus is two-fold: 1. patient and physician education, 2. clinical research in the areas of iron overload monitoring by MRI and long-term morbidity of Sickle Cell Disease.

Yves Pastore

Yves Pastore

M.D. Pediatric Hematologist F.M.H (Switzerland)

Vice-Chair, Board of Directors

I am the co-director of the sickle cell clinic at CHU Ste-Justine, the largest comprehensive pediatric sickle cell program in the province of Quebec, and the second largest in Canada.

I believe that knowledge transfer and education are key to improve the quality of care of patients with sickle cell disease.

Aisha Bruce

Aisha Bruce

M.D.

Secretary, Board of Directors

Medical Lead of the Pediatric Comprehensive Hemoglobinopathy Program of Northern Alberta.

Our program goal is to promote health and wellbeing for pediatric patients with hemoglobinopathies.  We are dedicated to health (including health maintenance and preventative medicine), education (for patients, families, healthcare professionals, administration and the public) advocacy, and research.

Michael Leaker

Treasurer, Board of Directors

Robert Klaassen

Robert Klaassen

MD, FRCPC

Chair of Governance and Nominating Committee, Board of Directors

Dr. Robert Klaassen is a Pediatric Hematologist/Oncologist and the Program Leader of the Hematology Program at the Children’s Hospital of Eastern Ontario, as well as an Associate Professor at the University of Ottawa.

Dr. Klaassen has always been strong advocate for patients with hemoglobinopathies – he is a founding member of the recently incorporated Canadian Hemoglobinopathies Association (CanHem). He has successfully co-chaired three conferences focusing on hemoglobinopathies with the last conference being the first national Canadian sickle cell conference. In 2005 he actively lobbied the Ontario government to include hemoglobinopathies in the expansion of the newborn screening program.

Non-Executive Board Members

 

Christine Chretien

Christine Chretien

RN BScN

Member, Board of Directors

The Nurse Case Manager promotes and facilitates family centered care through coordination of care for the child and their family in partnership with the interdisciplinary team. The Case Manager will establish partnerships with the interdisciplinary Hematology-Oncology service, child-family, and the patient’s community to advocate for optimal care of the child.

Liaising with the health care team and communicating with the family on a regular basis will ensure that continuity of care is maintained through all stages of the child’s illness, including long-term follow-up and transition.

Hatoon Ezzat

Hatoon Ezzat

Member, Board of Directors

I am the medical director and the principle physician of the adult Hemoglobinopathy program of British Columbia which is located at St. Paul’s hospital. I work as an assistant professor of Hematology at UBC.

The program goal is to promote awareness of Hemoglobinopathies with particular attention to thalassemia and sickle cell disease. I do believe that comprehensive care through a multidisciplinary program of these patients will improve outcome. My main areas of interest are iron overload management especially in non-transfusion dependent hemoglobinopathies and sickle cell disease in aging population.

Heather McCartney

BScN RN

Member, Board of Directors

I am the pediatric hemoglobinopathy nurse clinician at BC Children’s Hospital. My role is to provide comprehensive care for the children with sickle cell disease and thalassemia in our province.

Our provincial program follows children and young adults with hemoglobinopathies to ensure national standards of care are met for preventative care, ongoing treatment and emergencies. We are dedicated to helping families overcome the challenges they face in caring for a child with a chronic condition. Our goal for these patients is to ensure a healthy childhood and to prepare them for successfully managing their own care as adults. We collaborate with the adult team at St. Paul’s Hospital to ensure a smooth transition to adult care.

Paul Moorehead

MD

Member, Board of Directors

I am a pediatric hematologist/oncologist practicing in St. John’s, Newfoundland and Labrador.  I earned my MD at the University of Manitoba, before doing a general pediatrics residency here in St. John’s and a hematology/oncology fellowship at the Children’s Hospital of Eastern Ontario in Ottawa.

Since returning to St. John’s, I have established Newfoundland’s first comprehensive care clinic for children with sickle cell disease.  I have been an active partner of the Sickle Cell Disease Association of Canada (Association d’Anemie Falciforme du Canada), and I have been advocating for the implementation of universal newborn screen for sickle cell disease in Newfoundland and Labrador.

Veronique Naessens

Member, Board of Directors

Roona Sinha

MD, FRCPC

Member, Board of Directors

I am a Pediatric Hematologist Oncologist at the Royal University Hospital, Saskatoon/University of Saskatchewan and thus have the privilege of following any children diagnosed with a hemoglobinopathy in the province of Saskatchewan.  Our program is in the process of setting up a rare blood disorders clinic to provide our patients access to state of the art care.  We are also interested in collaborating with other health care professionals, the government, patient organizations and other colleagues from across the county to improve patient care for all patients living with hemoglobinopathies.